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NATIONAL STEERING GROUP  
National Steering Group on Self-Directed Services and Personal Budgets

This National Steering Group was established in May 2011 to exercise leadership and coordination across Australia in the development of self-directed services and personal budgets in aged care, chronic and mental illness, disability, special education and vocational training, and other areas of intensive personal and social support for individuals and families.

Its brief is to develop tools, systems, infrastructure, peer and professional supports for large numbers of Australians in exercising self-management in their personal and social supports.

The National Steering Group's Strategy Paper for the period 2012 -2013 is available here.

Expressions of interest are invited from individuals and organisations wishing to work with the National Steering Group in these areas.

To send a message to all members of the National Steering Group, email SteeringGroup@partnerships.org.au

National Steering Group Members

Siegfried Drews (VIC) managed his wife Mardi's 24 hour care needs through a technology portal he designed himself to assist in the recruitment and direct employment of staff.
[photo, right: Siegfried]

Claire Rennox (QLD) worked on the introduction and ongoing implementation of Direct Payments in Scotland and is now working in Disability Services, Queensland with individuals who are utilising self directed care.

Lorraine Hitt (WA) is Chair of Planned Individual Networks in WA, is negotiating self-management arrangements for her 47 year old son with multiple disabilities, and works as a Local Area Coordinator with the Disability Services Commission.

Trevor Parmenter (NSW) is Emeritus Professor and Foundation Chair of Developmental Disability at the University of Sydney and is a leading researcher and innovator in ageing, community living, and physical and mental health.

Ruth Robinson (NSW) is Executive Officer of the Physical Disability Council of NSW.

Peter Sparrow (SA) is CEO of the Carer Support and Respite Centre, and carer for his 21 year old step daughter who has physical and intellectual disabilities.

George Vassilou (VIC) manages his ageing mother's care package and his 23 year old daughter Natasha's disability package. [photo, right: George and his mother]

Wendy Hudson (WA) is Manager of Policy Development and Quality Assurance at Alzheimer's Australia WA, and a long time advocate of self-directed care.

Colin Peterson (VIC) is Finance Manager of the Cerebral Palsy Support Network.

Brian Wild (VIC) lives in Echuca and, together with his wife Lynne, manages the support packages of their adult sons with disabilities.

Livia Auer (ACT) is carer and legal guardian of her 32 year old sister Melanie who has an intellectual disability, and has recently begun managing Melanie's support package.

Peter Baker (QLD) is Professor of Medicine at the University of Queensland's Rural Clinical School.

Annette Herbert (SA) manages a support package for her 32 year old daughter Renee who has cerebral palsy and life threatening epilepsy.

Maree Ireland (VIC) is a person with multiple disabilities and coordinates a project on self-directed approaches at field - furthering inclusive learning and development.

Ruth Davey (SA) is a Director of Community Support and parent of a daughter with an intellectual disability participating in Phase 1 of self-managed funding in SA.

Christine Regan (NSW) is a parent of a 33 year old daughter with Down Syndrome, is Senior Policy Officer for Disability for the New South Wales Council of Social Services, and is secretary of the NSW Council on Intellectual Disability.

Leslee Hogan (QLD) lives in Atherton in Far North Queensland and manages a support package for her 25 year old son Paul who acquired a severe brain injury at the age of 20.

Kerry Hawkins (WA) is a family carer for her husband who has schizophrenia.

Suzette Gallagher (VIC) has managed her 45 year old son Shaun's disability package for 20 years.

Ian Bruce (SA) is is a volunteer social advocate with experience in business who has managed a consumer-directed EACH package on behalf of his sister.

Miriam Dixon (NSW) is CEO of Parkinson's NSW.

Sue Harrison (VIC) is a parent of a 26 year old daughter with intellectual disability and mental health issues, in receipt of a small respite package.

Tracey Forster (VIC) is Manager of Self-Management Support at Goulburn Valley Health in Shepparton.

Sharon Van der Laan (WA) is Executive Director of the Genetic Support Council WA.

Jennie Eve Somerville (NSW) is a survivor of psychiatry, with lived experience of self-management and advocate of self-management.

Sherryn West (QLD) is Business Services Manager for Micah Projects, developing individualised support arrangements for people experiencing or at risk of homelessness and mental illness.

Vern Hughes (Convenor VIC) is a parent of two sons with autism and mental illnesses and Director of Social Enterprise Partnerships.

To send a message to all members of the National Steering Group, email SteeringGroup@partnerships.org.au
 

Expressions of Interest in working with the National Steering Group

Expressions of Interest are invited in the following areas:
 
Family-Management of Aged Care Packages
National Register of Aged Care Agencies Willing to Host Family-Managed Arrangements
Consumer/Family-Managed Support Models in Mental Health
Consumer/Family-Managed Care Budgets and Support Models in Chronic Illness
Families Wanting to Self-Manage Integration Aide Funding in Schools
Families Wanting to Self-Manage VET Funding
National Register of Schools and VET Agencies Willing to Host Family-Managed Arrangements
Consumer and Family-Management of Disability Supports
National Register of Disability Agencies Willing to Host Consumer/Family-Managed Arrangements
Web-Based Portal - A Technology Platform for Consumer and Family-Management in Aged Care, Chronic Illness, Mental Illness, Disability and Education
Matching Support Workers with Individuals Needing Support

Family-Management of Aged Care Packages

Expressions of interest are invited from families wanting to self-manage their aged care package. We will connect up families in this category, supply information and support on how to proceed, and direct families to appropriate host agencies willing to host family-managed arrangements.

CLICK HERE to register your interest.

Expressions of interest are also invited from aged care agencies around the country willing to host family-managed arrangements.

CLICK HERE to register your organisation's interest.

Consumer/Family-Managed Support Models in Mental Health

Where a mental health organisation receives funding from one or more programs, it can, if it chooses, organise these funds in person-centred formats and allocate a budget to a consumer or family or their nominated agent.

Expressions of interest are invited from organisations, consumers and families in consumer/family-managed support models in mental health.

CLICK HERE to register your interest.

Consumer/Family-Managed Care Budgets and Support Models in Chronic Illness

Expressions of interest are invited from community and private sector health organisations in the development of consumer/family-managed care budgets and support models in chronic illness management.

Health care agencies in receipt of funding from one or more programs can, it they choose, organise these funds in person-centred formats and allocate a budget to a consumer or family or their nominated agent.

Expressions of interest are also invited from consumers and families in the design and trial of consumer/family-managed care budgets and support models.

CLICK HERE to register your interest.

Families Wanting to Self-Manage Integration Aide Funding in Schools

We are developing a National Register of families who want to self-manage their child's integration aide funding (or other education-based special needs funding) so that this money can be allocated only for personalised supports for their unique child.

Expressions of interest are invited from families wanting to self-manage this funding. We will connect up families in this category, supply information and support on how to proceed, and direct families to appropriate schools or agencies willing to host family-management arrangements.

CLICK HERE to register your interest.

Families Wanting to Self-Manage VET Funding

We would like to hear from families who want to self-manage their son or daughter's post school education and training funding (or other training-based special needs funding) so that this money can be allocated only for personalised supports for their son or daughter. (VET Vocational Education and Training)

Expressions of interest are invited from families wanting to self-manage this funding. We will connect up families in this category, supply information and support on how to proceed, and direct families to appropriate institutions or agencies willing to host family-management arrangements.

CLICK HERE to register your interest.

National Register of Schools and VET Agencies Willing to Host Family-Managed Arrangements

Expressions of interest are invited from schools, educational institutions, training providers and other agencies willing to host family-managed arrangements in education.

CLICK HERE to express your organisation's interest.

Consumer and Family-Management of Disability Supports

Expressions of interest are invited from consumers and families wanting to self-manage their disability supports.

Our aim is to assist consumers and families around the country in finding suitable methods of exercising self-management, and where appropriate, to connect people with host agencies willing to host consumer/family-managed arrangements (where a host agency is sought).

CLICK HERE to register your interest.

National Register of Disability Agencies Willing to Host Consumer/Family-Managed Arrangements

Expressions of interest are invited from disability agencies around the country willing to host consumer/family-management arrangements, and willing to be publicised as hosting these arrangements.

CLICK HERE to express your organisation's interest in being on the Register.

Self-Directed Services and Personal Budgets Portal - A Technology Platform for Consumer and Family-Management in Aged Care, Disability, Chronic Illness, Mental Health, and Education

Siegfried Drews is a retired Melbourne industrial insurance executive, and husband and carer to Mardi, who died of Motor Neurone Disease in 2010. Over the past five years, Siegfried developed a technology platform called Web2Care to support the planning, logistics, administration and reporting functions associated with supporting his wife's care. The portal integrates planning, budgeting, financial transactions, reporting, and local networking (if required) in a format applicable to children and adults in disability, chronic illness, mental health, aged care and many other settings.

The tool has three modules:

The Rostering Tool (Admin2Care) enables you to produce a roster of support, share this roster online with support workers so that variations can be made easily, with a time-tracker device for recording time worked, a wage and costs calculator, and a payslips, invoices, and report generator.

The Match-Taking Tool (Match2Care) enables support workers and people requiring support workers to find each other using a visual data base built on Google Maps to enable local matches, with search results linking to support workers and support recipients' profile pages, and to respective rosters showing 'Vacant Shifts' and 'Support Worker Availability'.

The Accounting Tool (Account2Care) enables you to keep track of all financial transactions and generate reports, not only related to your support activity, but to private and other business matters if you wish.

The process for participation is simple: consumers/families are invited to express an interest in this self-management tool. An initial assessment is made on suitability, and on approval participants register on the web-based system. Data entry is end-user controlled and maintained. 

CLICK HERE to express your interest in use of the portal.

Matching Support Workers with Individuals Needing Support

One component of Web2Care is Match2Care, a virtual meeting place linking support workers with individuals who need to find suitable support workers.

It's based on the same process now used widely in internet dating sites - support workers write up their own profile, people needing support workers write up their needs profile. And through the wonder of Google Maps, each can locate people close to them geographically who might make a good match.

Data entry is end-user controlled and maintained. The central data base is modelled on a successful ten year old United Kingdom initiative which is now functioning across the UK.

Support workers and people seeking support workers are asked to assess their status in terms of three options:

A: Complex/High Needs Personal Care
B: Standard Personal Care
C: Companion Care / Respite Care

There is no cost for support workers to register.

If you are a support worker, CLICK HERE to register your interest.


Further information

Vern Hughes
03 5629 8400 
0425 722 890
vern@partnerships.org.au

 
    

 

  OUR KEY AREASO

DISABILITY, AGED CARE , MENTAL HEALTH
Self-Directed Services and Personal Budgets
EDUCATION
Student-Centred Learning and Personal Budgets
HEALTH
Consumer-Centred Health Care and Personal Budgets
CONSUMER
MARKET POWER

Brokering Consumer Power in Utilities, Telecommunications

  DIARY

5-6 August 2013
Consumer Summit 2013, Melbourne. Empowering Consumers and Users of Services.
7 August 2013
Consumer Power Social Enterprise Workshop, Melbourne.
CLICK HERE for details.

NEWS
Making It Personal
This Demos Report from the UK on Persona Budgets and Self-Directed Supports provides an excellent overview of this agenda. CLICK HERE.
PROJECTS
A Personal Information Record for Every
Australian

Every person who has used services in social support, education and health care knows we need a consolidated personal information record.
CLICK HERE for more information.

Individual Learning Plans
Individualised learning should be a right for all children. CLICK HERE for more information.

Family Income Management Plans
Indigenous communities are not the only ones where Family Income Management Plans can make a difference. CLICK HERE for more information.

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