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This National Steering Group was established in May 2011 to
exercise leadership and coordination across Australia in the development of
self-directed services and personal budgets
in aged care, chronic and mental illness,
disability, special education and vocational training, and other
areas of intensive personal and social support for individuals and
families.
Its brief is to develop tools, systems, infrastructure, peer and
professional supports for large numbers of Australians in
exercising self-management in their personal and social
supports.
The National Steering Group's Strategy Paper for the period 2012
-2013 is available
here. Expressions of
interest are invited from individuals and organisations wishing
to work with the National Steering Group
in these areas. To send a
message to all members of the National Steering Group, email
SteeringGroup@partnerships.org.au
National Steering Group Members
 Siegfried Drews
(VIC) managed his
wife Mardi's 24 hour care needs through a technology portal he
designed himself to assist in the recruitment and direct employment of staff.
[photo, right: Siegfried]
Claire
Rennox (QLD)
worked on the
introduction and ongoing implementation of Direct Payments in
Scotland and is now working in Disability Services,
Queensland with individuals who are utilising self directed
care.
Lorraine Hitt
(WA) is Chair of Planned Individual Networks in WA, is
negotiating self-management arrangements for her 47 year old son
with multiple disabilities, and works as a Local Area
Coordinator with the Disability Services Commission.
Trevor
Parmenter (NSW) is Emeritus Professor and Foundation
Chair of Developmental Disability at the University of
Sydney and is a leading researcher and innovator in ageing,
community living, and physical and mental health.
Ruth
Robinson (NSW) is Executive
Officer of the Physical Disability Council of NSW.
Peter
Sparrow (SA) is CEO of the Carer Support and
Respite Centre, and carer for his 21 year old step daughter
who has physical and intellectual disabilities.
 George
Vassilou (VIC) manages his ageing mother's care
package and his 23 year old daughter Natasha's disability
package.
[photo, right: George and his
mother]
Wendy
Hudson (WA) is Manager of Policy Development and
Quality Assurance at Alzheimer's Australia WA, and a long
time advocate of self-directed care.
Colin
Peterson (VIC) is Finance Manager of the Cerebral
Palsy Support Network.
Brian Wild
(VIC) lives in Echuca and, together with his wife
Lynne, manages the support
packages of their adult sons with disabilities.
Livia Auer
(ACT) is carer and legal guardian of her 32 year old
sister Melanie who has an intellectual disability, and has
recently begun managing Melanie's support package.
Peter Baker
(QLD) is Professor of Medicine at the University of Queensland's
Rural Clinical School.
Annette
Herbert (SA) manages a support package for
her 32 year old daughter Renee who has cerebral palsy and life
threatening epilepsy.
Maree
Ireland (VIC) is a person with multiple disabilities
and coordinates a project on self-directed approaches at
field - furthering inclusive learning and development.
Ruth Davey
(SA) is a Director of Community Support and
parent of a daughter with an intellectual disability
participating in Phase 1 of self-managed funding in SA.
Christine
Regan (NSW) is a parent of a 33 year old
daughter with Down Syndrome, is Senior Policy Officer for
Disability for the New South Wales Council of Social Services,
and is secretary of the NSW Council on Intellectual
Disability.
Leslee
Hogan (QLD) lives in Atherton in Far North Queensland
and manages a support package for her 25 year old son Paul who
acquired a severe brain injury at the age of 20.
Kerry
Hawkins (WA) is a family carer for her husband who
has schizophrenia.
Suzette
Gallagher (VIC) has managed her 45 year old son Shaun's
disability package for 20 years.
Ian Bruce (SA) is is a
volunteer social advocate with experience in business who has
managed a consumer-directed EACH package on behalf of his
sister.
Miriam
Dixon (NSW) is CEO of Parkinson's NSW.
Sue
Harrison (VIC) is a parent of a 26 year old daughter
with intellectual disability and mental health issues, in
receipt of a small respite package.
Tracey
Forster (VIC) is Manager of Self-Management Support
at Goulburn Valley Health in Shepparton.
Sharon Van der Laan (WA) is
Executive Director of the Genetic Support Council WA.
Jennie Eve Somerville (NSW)
is a survivor of psychiatry, with lived experience of
self-management and advocate of self-management.
Sherryn
West (QLD) is Business Services Manager for Micah
Projects, developing individualised support arrangements for
people experiencing or at risk of homelessness and mental
illness.
Vern Hughes (Convenor VIC)
is a parent of two sons with autism and mental illnesses and
Director of Social Enterprise Partnerships.
To send a
message to all members of the National Steering Group, email
SteeringGroup@partnerships.org.au
Expressions
of Interest in working
with the National Steering Group
Expressions of Interest are invited
in the following areas:
Family-Management
of Aged Care Packages
Expressions of interest are invited from families
wanting to self-manage their aged care package. We will connect up
families in this category, supply information and support on how to
proceed, and direct families to appropriate host agencies willing to
host family-managed arrangements.
CLICK HERE
to register your interest.
Expressions of interest are also invited from
aged care agencies around the country willing to host family-managed
arrangements.
CLICK HERE
to register your organisation's interest.
Consumer/Family-Managed
Support Models in Mental Health
Where a
mental health organisation receives funding from one or more programs, it can,
if it chooses, organise these funds in person-centred formats and
allocate a budget to a consumer or family or their nominated agent.
Expressions of interest are invited from organisations, consumers and
families in consumer/family-managed support models
in mental health.
CLICK HERE
to register your interest.
Consumer/Family-Managed Care Budgets and Support Models in
Chronic Illness
Expressions of interest are invited from community and private sector
health organisations in the development of
consumer/family-managed care budgets and support models in chronic illness management.
Health
care agencies in receipt of funding from one or more programs can, it
they choose, organise these funds in person-centred formats and allocate
a budget to a consumer or family or their nominated agent.
Expressions of interest are also invited from
consumers and families in the design and trial of consumer/family-managed
care budgets and support models.
CLICK HERE
to register your interest.
Families
Wanting to Self-Manage Integration Aide Funding in Schools
We are developing a National Register
of families who want to self-manage their child's integration aide
funding (or other education-based special needs funding) so that this
money can be allocated only for personalised supports for their unique
child.
Expressions of interest are invited from
families wanting to self-manage this funding. We will connect up
families in this category, supply information and support on how to
proceed, and direct families to appropriate schools or agencies willing
to host family-management arrangements.
CLICK HERE
to register your interest.
Families Wanting to Self-Manage VET Funding
We would like to hear from families who want to self-manage their son or daughter's post school
education and training funding (or other training-based special needs
funding) so that this money can be allocated only for personalised
supports for their son or daughter. (VET Vocational Education and
Training)
Expressions of interest are invited from
families wanting to self-manage this funding. We will connect up
families in this category, supply information and support on how to
proceed, and direct families to appropriate institutions or agencies
willing to host family-management arrangements.
CLICK HERE
to register your interest.
National Register
of Schools and VET Agencies Willing to Host Family-Managed Arrangements
Expressions of interest are invited from
schools, educational institutions, training providers and other agencies willing
to host family-managed arrangements in education.
CLICK HERE
to express your organisation's interest.
Consumer
and Family-Management of Disability Supports
Expressions of interest are invited from consumers
and families wanting to self-manage their disability supports.
Our aim is to assist consumers and families around
the country in finding suitable methods of exercising self-management,
and where appropriate, to connect people with host agencies willing to host
consumer/family-managed arrangements (where a host agency is sought).
CLICK HERE
to register your interest.
National Register of
Disability Agencies
Willing to Host Consumer/Family-Managed
Arrangements
Expressions of interest are invited from disability agencies around the
country willing to host consumer/family-management arrangements, and
willing to be publicised as hosting these arrangements.
CLICK HERE
to express your organisation's interest in being on the Register.
Self-Directed Services and Personal Budgets Portal
- A
Technology
Platform
for Consumer and Family-Management in Aged Care,
Disability, Chronic Illness, Mental Health, and Education
Siegfried Drews is a retired Melbourne industrial
insurance executive, and husband and carer to Mardi, who died of Motor Neurone
Disease in 2010. Over the past five years, Siegfried developed a
technology platform called Web2Care to support the planning,
logistics, administration and reporting functions associated with
supporting his wife's care. The portal integrates planning, budgeting, financial
transactions, reporting, and local networking (if required) in a format
applicable to children and adults in disability, chronic illness, mental
health, aged care and many other settings.
The tool has three modules:
The Rostering Tool
(Admin2Care) enables you to produce a roster of support, share this
roster online with support workers so that variations can be made
easily, with a time-tracker device for recording time worked, a wage and
costs calculator, and a payslips, invoices, and report generator.
The Match-Taking Tool
(Match2Care) enables support workers and people requiring support
workers to find each other using a visual data base built on Google Maps
to enable local matches, with search results linking to support workers
and support recipients' profile pages, and to respective rosters showing
'Vacant Shifts' and 'Support Worker Availability'.
The Accounting Tool
(Account2Care) enables you to keep track of all financial transactions
and generate reports, not only related to your support activity, but to
private and other business matters if you wish.
The process for participation is simple:
consumers/families are invited to express an interest in this
self-management tool. An initial assessment is made on suitability, and
on approval participants
register on the web-based system. Data entry is end-user controlled and
maintained.
CLICK HERE
to express your interest in use of the portal.
Matching Support
Workers with Individuals Needing Support
One component of Web2Care is Match2Care, a virtual
meeting place linking support workers with individuals who need to find
suitable support workers.
It's based on the same process now used widely
in internet dating sites - support workers write up their own profile,
people needing support workers write up their needs profile. And through
the wonder of Google Maps, each can locate people close to them
geographically who might make a good match.
Data entry is end-user controlled and maintained.
The central data base is modelled on a successful ten year old United
Kingdom initiative which is now functioning across the UK.
Support workers and people seeking support workers
are asked to assess their status in terms of three options:
A: Complex/High Needs Personal Care
B: Standard Personal Care
C: Companion Care / Respite Care
There is no cost for support workers to register.
If you are a support worker,
CLICK HERE
to register your interest.
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